We had a GREAT night. Josiah slept all night long and we had to wake him up for feeds. (Well, we TRIED to wake him up for feeds.) Last night I just prayed and asked God for His mercy on this one-- because I was so tired. It was really nice to be able to sleep-- what a difference it makes in our outlook.I don't really know what's on tap for today-- they did say they are going to put him on a special machine that may help get him off of oxygen. I had mentioned before that he's really on VERY little oxygen, however, he doesn't do well when they turn it off. So one of the things they suspect is that it's not actually the oxygen he is needing but the pressure of the oxygen being forced into his nose that is helping him to breathe. So they will check that today.
Josiah's incision infection seems to be getting better. I still think it looks gross, but the doctor thinks it's looking good.
Feeds are going pretty well. Since they have upped his volumes (almost doubled it!) he's not taking complete feeds for the most part, but he's doing pretty well still. We're pretty sure he will have to go home with a NG tube, but we are okay with that. He's still losing weight as of yesterday-- (he's down to 8 lbs, 10 oz... so it's good that he started as a chunky monkey.) We are just really ready to go home. Before the surgery they told us that recovery would probably be 7-10 days. Well, today is 7 days since surgery and they keep telling us that we should be going home "any day now" or "withing a day or two."
Oh, one thing I wanted to mention-- THANK YOU for all of your emails. I am sorry that we've not been able to respond personally to all of them right now. The wireless here is awful, and we just haven't had time. But know that we are trying to check email every day and we appreciate all of the support.
